4 days and counting! School is right around the corner. It has been a fantastic summer, and I am just not ready to see it come to an end. This new school year is particularly stressful for all of us. This year both of my little sweeties will be going to a new school.
You may be wondering why. Why on earth would I take my kids out of a school that is such a good school? Their grandma teaches there, I went to school there when I was little, and we have lots of friends there. Staying at the school is a no-brainer, right? Well, that's what I thought too...until May.
After an IEP review, school conference and lots of phone calls and meetings, it was decided that Joshua simply needed a higher level of educational care. Now, let me be candid here. This came as a complete shock to me at the time! What? A SLIC program would be a better fit? I suppose this should not have been such a shocker, however, I felt like I'd been hit by a bus! It was just another reminder that Joshua was not going to "grow out" of Fragile X. So, I cried (a LOT), put on my big girl panties and got Joshua enrolled in the SLIC program at a new school.
If you have lived with a family member who has a disability, major illness, or any other struggle for that matter, you know that it is not just the affected family member who is effected! This could not be truer for anyone in our family than Faith. Since Joshua's birth, Faith has been his best friend and sweetest little advocate. If something hurts him, it hurts her too. She celebrates his successes and encourages him in his struggles. Did I mention that she is the kindest little girl I've ever met? So, how did I expect that this school switcheroo would be any different?
As soon as Faith discovered that Joshy would be going to a different school she came to me and told me she NEEDED to go to Joshua's new school with him. I had fully expected to keep her at her old school with her friends. She'd been there since kindergarten! I explained that she didn't need to move. She could stay where she was and no one would be upset or disappointed. Faith, being her amazing little self, was adamant. She needed to be with her brother. It was important to her to be in the same school so she could protect him and make him feel safe if he needed her; more important than staying with her friends and grandma in a place she already knew. This was one of the many "melt my heart" moments!
So, here we are, 4 days until school starts and I am smack dab in the middle of a not-so-supermom situation! Of course, most of these situations come out of the blue. Yesterday, I asked the kids what they wanted to wear for their first day of school. A seemingly normal question, right? Well...not so much! Faith has a VERY cute new outfit(THANKS Grandma) picked out. She knows what shoes, earrings, and even lip gloss she is going to wear. She is such a pretty little princess! Now here is where this conversation comes to a screeching halt! Joshua says, "I wearin my Hulk shirt." If you know us, or have seen our pictures on Facebook, you will have seen Joshua's Hulk shirt about a thousand times. No, it is not the only shirt he owns, though all of our pictures over the past year would beg to differ! He has lots of cool new school clothes, but he has come to the belief that the Hulk shirt is to be worn EVERY Tuesday, and all other days that are special. (This means everything from pizza day at school to Birthday parties to field trips, etc.)
Needless to say, that poor shirt has seen better days. It is getting too small and the design is wearing off! The question? What to do??? The answer? SCRAMBLE!!! The major stress of going to a new school already has Joshua unraveled. Trying to get him to go to that school without a Hulk shirt is just not worth the meltdown! SO...4 days and counting and now I need to find a replacement Hulk shirt! Let's see how this not-so-supermama makes this happen. Ready, set, here we go!
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